Parents of an ill baby who is suffering from a rare condition are devastated by the judge’s decision that the doctors can switch off his life-support against their wishes.
Connie Yates and Chris Gard who are nearly in their 30’s were screaming “no” in the court after the judge sided with Great Ormond Street doctors, that they can turn off the baby’s life-support machine. The decision on eight-month-old Charlie’s care was announced by Mr. Justice Francis.
The judge analyzed the evidence for three days and visited the child in the special care unit as well to fully inform his decision.
Mr. Justice Francis said that the decision was made with the heaviest of hearts but with the complete conviction for the baby’s best interests. Stating that he should be able to die with dignity.
What concerned the baby’s parents the most, was that they couldn’t understand why the judge had not given Charlie at least the chance of treatment.
Hobey-Hamsher, the couple’s solicitor, said Charlie’s parents would now “consider what they can do next”.
Charlie was born on August 4, 2016, and suffers from a form of mitochondrial disease. It is a condition that causes progressive muscle weakness and brain damage.
A lot of specialists in London think that it is time to stop giving life support treatment for Charlie. Doctors say that the boy suffers from a rare genetic condition and has brain damage. He should be moved to a palliative care regime.
Charlie’s parents disagree.
Postman Chris and Connie from west London, want to take the baby to a hospital in the US for a trial treatment. Doctors in America offered to try a treatment which is called nucleoside bypass therapy but the judge said that the experts already agreed that the treatment could not do anything for Charlie’s brain damage.
Then, his parents launched an appeal on the GoFundMe website about two months for 1.2million to fund the treatment.
They reached their target and more than 80,000 people donated money.
A GoFundMe spokesman said: “We’ll be speaking privately to the family in the next few days about what they want to do and how we can support them.”
Still, Mr. Justice Francis ruled that life support treatment should stop after analyzing evidence at a hearing in the Family Division of the High Court in London.
He said: “It is with the heaviest of hearts, but with complete conviction for Charlie’s best interests, that I find it is in Charlie’s best interests that I accede to these applications and rule that Great Ormond Street may lawfully withdraw all treatment save for palliative care to permit Charlie to die with dignity.
“I want to thank the team of experts and carers at Great Ormond Street, and others who cannot be named, for the extraordinary care that they have provided to this family.
“Most importantly of all, I want to thank Charlie’s parents for their brave and dignified campaign on his behalf, but more than anything to pay tribute to their absolute dedication to their wonderful boy, from the day that he was born.”
He then, added: “Charlie’s parents have, sadly but bravely, acknowledged and accepted that the quality of life that Charlie has at present is not worth sustaining, for he can only breathe through a ventilator.
“And, although they believe that he has a sleep/wake cycle, and can recognise them and react to them when they are close, they realise that he cannot go on as he is.
“He is lying in bed, unable to move, fed through a tube, breathing through a machine. In my full judgement, I shall set out more details of his full medical condition.”
Then, Charlie’s parents made a statement to Charlie:
“We love you. We will fight for you until the very end and we’ll pray that we’ll get to hold your warm hand forever. We won’t give up on you because you have a rare disease, it’s not your fault, you shouldn’t have to die.”