Co-Founder Of The ALS Ice Bucket Challenge Dies Aged 46 • MetDaan

Co-Founder Of The ALS Ice Bucket Challenge Dies Aged 46

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Remember back in the summer of 2014 when everyone started throwing ice buckets on their bodies like it was something ordinary? Anthony Senerhia Jr, co-founder of the ALS Ice Bucket Challenge, has died aged 46. The Ice Bucket Challenge, or the ALS Ice Bucket Challenge, is an activity involving the dumping of a bucket of ice and water over a person’s head. This was done either by yourself or by someone else so as to promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research. After a couple of people started it, it quickly went viral and a lot of celebrities started doing it and donated money to other organizations.

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The fund-raising trend involved people nominating each other on social media in the name of charity. Anthony has made an incredible difference to people’s lives in the last couple of years. The Facebook challenge raised a lot of money for a great cause. Supporters ended up raising over $115 million for the ALS Association. The money was used to fund the research and development of treatment drugs.

To be exact, $77 million, or 67 percent of the total money went to the research of the disease ALS, also known as motor neurone disease or Lou Gehrig’s disease.

This disease causes a quick breakdown in a person’s ability to control muscle movement. It’s because it targets nerve cells in the brain and spinal cord. Other famous cases aside from baseball player Lou Gehrig include British scientist Professor Stephen Hawking.

Anthony Senerchia Jr was diagnosed with amyotrophic lateral sclerosis in 2003. His 14 year long battle is now over. He was a brave man who fought together with his family and community from his home in Pelham, New York.

In 2014 he was the inspiration behind the viral trend, which raised funds and also awareness for the disease. The challenge spread very quickly on the social media and a lot of celebrities took part. These included celebrities such as Mark Zuckerberg, Tom Cruise and Robert Downey Jr., as well as hundreds of thousands of people from all around the world.

Source: MonthlyFails

The campaign raised over $100m within 30 days, and went on to fund a number of research projects. These projects included one scientific breakthrough in ALS research where a brand new gene was discovered.

In Anthony’s touching obituary, his family said about him: “He worked tirelessly to raise awareness for ALS and was directly responsible for the world-renowned Ice bucket challenge.”

The man became an inspiration for the viral challenge after his wife’s cousin, golfer Chris Kennedy, was nominated to take part in an ‘ice bucket’ challenge.

At that point, Kennedy’s challenge was not about the disease that Anthony suffered from. After deciding to take part, Kennedy said he would do it to raise money for ALS and passed the challenge on through social media. Eventually, Anthony set up his own charity, called the Anthony Senerchia Jr. ALS Charitable Foundation. It donated money to the Columbia Presbyterian Medical Center for ALS research, as well as to families whose lives were affected by the disease.

The obituary continues: “Anthony will be remembered as a fireball who tried everything in life. He was family oriented, generous and always ready to lend a helping hand.”

Senerchia left behind his wonderful wife, Jeanette Hane Senerchia, and his young daughter, Taya. It is now clear that he will never be forgotten by his community. An online fund has even been started for his daughter, which has so far raised more than $50,000.

“It’s a difficult disease and tough when you’re losing,” his wife Jeanette said in an interview. “Your body is failing you. But he was a fighter … He was our light. He made our life better.”

Source: auntyacid

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