Kayla Hansen was a happy restaurant manager until one day, her life changed dramatically. She woke up with a strange rash, but she assumed it is nothing serious to worry about. As days passed by the rash didn’t go away, so she decided to ask for help. However, the doctors weren’t that happy with her condition. Their words touched her deeply.
Doctors diagnosed the 28-yars-old Kayla with Complex regional pain syndrome (CRPS), which is also known as reflex sympathetic dystrophy (RSD). This condition also worsens with time. Apart from the rash, you can get severe pain and sensitivity, and swelling. It can spread all over your body, which was the case with Kayla. The cause of this disease is still unknown.
Hansen opened up about her story on social media. She wants people to understand her struggle with this disease. Here is her story below:
“Dec. 27th 2015 I went into work just like every other day not knowing my life as I knew it was soon to be over. I, unfortunately, got my hand slammed in between two doors and initially just thought my hand was broken. After 2 months of the swelling not going down, and my arm feeling like it was on fire I was given the diagnosis that I had complex regional pain syndrome also known as CRPS.
“It is extremely rare and is literally rated the most painful thing In the world. More painful than childbirth, amputation, or any cancer there is. It is an autoimmune disease that effects every single part of your body including organs. Your body can no longer control temperature and it literally feels like you are being burned alive 24/7. Along with the burning there are a million other symptoms, your brain tells every part of your body that it is hurting. It affects your bones, muscles, every nerve in your body, body tissue and all organs.
Also, she adds:
“Some people are lucky and the disease stays contained In just one limb. However, I am very unlucky and mine has spread from my head to my toes in just over a year. I have seen over 50 doctors and they all say mine is the worst case they’ve ever seen. My condition is so bad that I’m literally being burned alive. Both of my arms from my shoulders down to my hands are covered in serious burns that start from the inside out. The burns are so serious that I have been hospitalized numerous times because if I were to get an infection I’d easily lose my arms. I am starting this go fund me for numerous reasons…. the first being the costs of all my treatments. In a little over a
She also says that there is no cure for that disease, but she will try various doctors who may help her. Therefore, she started a fund for her. She lives with her family as they are the only ones who can hep her.
Finally, she adds:
“The other reason I am starting this account is I DESPERATELY WANT TO SPREAD THE WORD OF THIS AWFUL DISEASE. Although it is very rare we need to spread the word and make it so the whole world is informed of this condition. It can happen to anyone at anytime. It is known as the suicide disease because up to 40% of people with this disease kill themselves because the pain is so incredibly unbearable most cannot live with it. I understand everyone has their own issues and money problems but even if you cannot donate PLEASE PLEASE SHARE THIS ACCOUNT SO THE WORLD CAN BE INFORMED OF THIS TERRIBLE DISEASE AND MAYBE ONE DAY FIND A CURE.”
You can visit her page on GoFundMe and help share her story.